About the EPSA
The EPSA has been developed by Dutch Institute for Clinical Auditing in 2014 in collaboration with the Dutch Pediatric Surgical Association. First, Dutch, new-born children with the following four diseases were registered: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Esophageal Atresia and Anorectal Malformation. In 2017 the audit was extended to include patients with Omphalocele and Gastroschisis.
Since then ERNICA has obtained financial support of the European Commission to create a registry for all European children with rare inherited diseases and congenital anomalies. This registry was built upon the EPSA, and included an increasing number of European Hospitals.
The primary aim of the EPSA|ERNICA Registry is to improve the quality of patient care. For instance by enabling health care providers to gain insight in their own outcomes and comparing those to outcomes of other centers, by using quality indicators selected by international experts in the field. Additionally, the cumulative data in the EPSA can be used to conduct scientific research to improve quality of care, for example to compare treatments or identify certain risk factors for complications. In the EPSA, data is entered anonymously and then processed by MRDM, completely adhering to GDP Regulations.
Practical information
Registering instructions can be found by clicking on “Documents”. Here you will also find the form for requesting login credentials for “Survey” (the registration system).
You can download the data dictionary, CRF and XSD via the MRDM website. These documents can be helpful during the registering process.
Inclusion criteria
All patients undergoing treatment for Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Esophageal Atresia, Anorectal Malformations, Omphalocele or Gastroschisis.
Registering patients
Patients are registered in the registration system “Survey”.
If you encounter any problems with logging in to the system, please contact the Service Desk.
Codman Dashboard
In the Codman Environment, health care providers gain insight in their own outcomes and how those compare to the European averages (benchmark information). This is done using ‘Codman Indicators’ and ‘Codman Explorative”. This information is updated weekly and is not made public. Yearly reports will be published in November.
Codman Indicatoren
In ‘Codman Indicators’ you can find all quality indicators. Per indicator the calculation rule, as well as the inclusion- and exclusion criteria (to which patients the indicator applies) are displayed.
Codman Explorative
‘Codman Explorative’ enables you to filter information on treatment results by for example age, comorbidity or surgical technique. By applying the correct filters, you will receive accurate, uncorrected information about these specific patients. The results of your center will be compared to others in a European benchmark. Here you will also find an overview of all your registered patients and consequently the total number of registered patients in the Audit for your center.
Log-in Codman Environment
To login for the EPSA: https://epsa-kpi.valuebase.nl
Activate your account by following these steps:
If you already have log-in credentials for ‘Survey’, use these credentials to log in.
If you do not have a user name or password, please contact the Service Desk.
If you do have an user name, but do not yet have a password, you can set a password by clicking on “Forgot my password”. You will receive an e-mail with therein a link to change your password. Did you not receive an e-mail? Please check your spam folder.
After logging in, you can use the menu in the left top corner to switch between the different reporting environments (e.g. Indicators, Explorative).
Apply to register: how to sign up your Medical Centre
Do you have any questions, or do you wish to participate in the EPSA | ERNICA Registry? Please contact the DICA Servicedesk.
Tel: 0031 88 570 00 10
E-mail: dica-servicedesk@mrdm.nl
The servicedesk is available every working day between 09.00h and 17.00h (GMT+1).